Effects of Genetic Hearing Impairment in the Family addresses the problem by secondary analyses of existing large scale population studies, by prospective investigation of individuals with a family history of hearing impairment and by specific studies on patients with otosclerosis and neurofibromatosis 2 and their families.

Features:

• Looks at the specific impact of deaf culture, ethnicity and religion on reactions to deafness and the specific needs in genetic counselling
• Represents an important first step in this field and should be an invaluable resource for all professionals involved with people with hearing impairments

Contents

Retrospective Studies

• The impact of having a family history of hearing loss in elderly people
• The impact of a family history of hearing loss in the Blue Mountain Study
• The impact for children of having a family history of hearing impairment in a UK-wide population study
• Early childhood hearing impairment and family history - a long-term perspective
• Effects of a history of hearing problems in the family of origin on the working life

Prospective Studies Late Onset Hearing Impairment

• Effects of a family history on late onset hearing impairment: results of an open-ended questionnaire
• Effects of a family history on late onset hearing impairment: results of an open-ended questionnaire
• The impact that a family history of hearing impairment has on those with the condition themselves
• Influence of a family history of hearing impairment on participation restriction, activity limitation, anxiety and depression
• Does a family history of hearing impairment effect help seeking behaviour and attitudes to rehabilitation
• The impact of a Family History of Hearing Impairment on rehabilitative intervention: A one-year follow-up

Conditions Associated with Familial Hearing Impairment

• The influence of a family history of hearing loss and/or of tinnitus on tinnitus annoyance and distress
• Tinnitus –The Impact of Family History
• Psychosocial aspects of Neurofibromatosis type 2 reported by affected individuals
• Psychosocial aspects of Neurofibromatosis type 2 reported by relatives/ significant others
• Attitudes of Adults with Otosclerosis Towards Issues Surrounding Genetics and the Impact of Hearing Loss
• Peoples reaction to having a family history of Otosclerosis

Genetic Counselling and Family Reactions

• Genetic Counselling and the d/Deaf Community
• Seeing Chromosomes: improving access to culturally-sensitive genetic counselling through the provision of genetic information in British Sign Language
• Ethnicity, spirituality and genetics services
• Living with NF2 (Peter Crawshaw and Cynthia Crawshaw
• The meaning of hearing loss in the same family over nearly 200 years

Research Needs

• Family History of Hearing Impairment and its psychological and social consequences

Index

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